Video Producer/DoP - Dan Sanguineti
Camera Operator/Assistant - Michael Watson
Video Editors - Peta Lioulios and Dan Sanguineti
The activities and resources for each module are suggestions. However, many of these are suitable for use with other modules, and you may choose to mix and match to suit your need.
|Journal excerpt||Points to consider & suggested activities|
Journal Excerpt 7.1:
Mary's speech is getting more difficult to understand, particularly at morning and night. I'm getting advice and suggestions from a number of quarters in regards to the ventures [sic] of continuing to look after Mary at home vs. putting Mary in a nursing home. E.g. Nadia James suggested Malanni (aged care home)- close. Could easily visit etc. Someone advised from … , Jess, family (Kaleb & Ava-Leigh). Emphasis seems to be on my needs - health etc. I think Mary is not yet ready for residential care. Her quality of life is best served at home. I must take a more relaxed attitude and put Mary's interests first. Take each day as it comes and the pursuit for what may happen in the future.
Leave doing some activities till later. Bridge, dancing, golf - at least on a ... basis. Mary's mobility is slowly deteriorating which could be a problem in the future.
7.1 Points to consider:
Decision-making for the future–
Communication is critical–
7.1 Suggested Activities:
Journal Excerpt 7.2:
21 April 2009
Visited 5 - 7 pm. Looking for 'something to treat'. On drip, giving oxygen through mask, urine taken. Further tests tomorrow. Orlando, Kalab and Ava- Leigh told.
Had talk to Dr Darcy. Evans. Female nurse, Belinda, and Male nurse, Jack. Discussed continuing life support if all possibility of recovery has passed. (Continuing equivalent to 2-3 days).]
Explained that Mary and I had discussed this matter. We chose to discontinue support past a reasonable stage.
7.2 Points to consider:
When does the Act of Dying begin?
Generational approach to health care
–who are the stakeholders/who
Advanced care plan
The model for nursingAt what stage/time is it appropriate to begin discussing palliative care?
Journal Excerpt 7.3:
Surprised to be having this discussion at this early stage. Darcy. indicated that this kind of discussion was routine as it was preferable for the medical team to know the thoughts of family members before commencing normal treatment regime.
Tuesday 10:30 pm
Mary will be admitted - check tomorrow where she is located and who her Dr is.
Thursday, 23 April 2009
Orlando, Kaleb visited hospital. Spoke to Ava-Leigh. and Maree. Someone (Adrienne?) left flowers. Phillipa came 2 hours - phoned her tonight.
Thursday, 23 April 2009
Roxanne., Dr. Somme, ... Hospital registrar. Had good talk. Cause of Mary's condition still elusive. Admits to puzzle. Tested, brain, chest, urine, skin - nothing positive. Will continue anti-biotics for 2-3 days. Dementia patients sometimes act "differently".
Orlando, Aiden, Oodette and Hannah. visited. No positive signs of recognition.
Sunday, 26 April 2009
Monday, 27 April 2009
Maree and self visited during day. Kalab at night. Beatrix Matthews. called.
Tuesday, 28 April 2009
7.3 Points to consider:
Who and how many involved in Mary’s care
‘Outside’ intervention and sidelining the primary carer
Communicating care to the family
Type of Support & Appropriate Support: